Protecting Your Genetic Data Amid 23andMe's Bankruptcy

The recent bankruptcy filing by DNA testing service 23andMe has raised significant concerns about the future of the genetic data of its 15 million customers. While the company assures that data privacy will remain a priority in any future transactions, experts and lawmakers are urging customers to take proactive steps to safeguard their information. The potential change in ownership could lead to alterations in how data is managed and utilized, making it crucial for users to be vigilant.

For those who have shared their DNA with 23andMe, there are actionable steps you can take to protect your data. Although you cannot completely delete all your information, you can control certain aspects. The process of data removal may be slower than usual due to increased traffic on the 23andMe website, as many users are attempting to delete their data.

To delete your data, log in to your 23andMe account and navigate to the Settings section. Scroll down to the 23andMe Data selection, click on View, and proceed to the Delete Data section. Select the Permanently Delete Data button, after which you will receive an email with a link to confirm your deletion request. It is advisable to download a copy of your data before deletion.

However, it is important to note that 23andMe's privacy policy allows the company and its labs to retain certain genetic information, such as date of birth and sex, to comply with legal obligations. Additionally, limited account information related to your data deletion request may be retained for legal and audit purposes.

If you have previously opted to store your saliva sample and DNA, you can revoke this permission through your account settings. Navigate to Preferences and withdraw consent from the Research and Product Consents section. While you can reverse this consent, you cannot delete the information already used for research.

It is also crucial to encourage family members to take similar steps, as their genetic data is interconnected with yours. Ensuring that friends and loved ones are aware and taking action can help protect their data as well.

QuarkyByte offers comprehensive insights into data privacy and security, empowering you with the knowledge to safeguard your digital footprint. Our solutions are designed to help businesses and individuals navigate the complexities of data management, ensuring that your information remains secure in an ever-evolving digital landscape.